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RAYNAUD'S DISEASE

DESCRIPTION

Raynaud's disease is a primary disorder of the circulatory system that affects blood circulation to the fingers and occasionally the toes. This is different from Raynaud's phenomenon, which is a circulatory-system disorder that occurs as a complication of other diseases. The small arteries to the hands and feet are involved. Both sexes can be affected but it is most common in females after age 12.
Appropriate health care includes:
  • Self-care after diagnosis.
  • Doctor's treatment.
  • Biofeedback training (See Glossary).
  • Surgery to sever sympathetic nerves to the involved extremities. Surgery usually relieves symptoms for 1 to 2 years before they recur.

    SIGNS & SYMPTOMS
    Early symptoms:

  • Fingers that turn pale when exposed to cold or stress. Paleness is followed by a bluish tinge, then redness. Pain, numbness and tingling accompany the color changes. Warmth relieves these symptoms. Late symptoms:
  • Chronic infections around the child's fingernails and toenails.
  • Ulcers on fingertips caused by inadequate blood circulation in fingers. Symptoms develop gradually over a period of years. With Raynaud's phenomenon, symptoms may begin suddenly.

    CAUSES
    Spasms of arteries that supply blood to the fingers and toes caused by extreme sensitivity to cold. The sensitivity may be due to poor function of the child's autoimmune system.

    RISK FACTORS
    Stress; smoking, which impairs circulation to the extremities; cold, wet weather.

    PREVENTING COMPLICATIONS OR RECURRENCE

    Your child should not start smoking. Tobacco triggers the problem. This disease is rare among non-smokers.
    OTHER
    There are many similarities between Raynaud's disease and Raynaud's phenomenon. Diagnosis between the two may require years of observation.

    BASIC INFORMATION

    MEDICAL TESTS

  • Your own observation of symptoms.
  • Medical history and physical exam by a doctor.
  • Laboratory blood studies.
  • X-rays of the child's hands and feet.

    POSSIBLE COMPLICATIONS

  • Permanent weakness and numbness in the child's toes and fingers.
  • Gangrene and amputation (worst cases only).

    PROBABLE OUTCOME
    This condition is currently considered incurable. The disease worsens gradually over many years. However, your child's symptoms can be relieved or controlled. Most children cope well with Raynaud's disease and live a normal life span if complications don't arise. Scientific research into causes and treatment continues, so there is hope for increasingly effective treatment and cure.

    TREATMENT

    HOME CARE

    Instructions for your child:
  • Stop smoking. Symptoms will improve if you do.
  • Avoid exposure to cold in any form. Wear mittens and gloves outdoors and when handling ice or frozen foods.
  • Wear comfortable, roomy shoes and wool socks.
  • Avoid stressful situations. See Appendix 19.
  • Move to a warm climate, if possible.

    MEDICATION

  • Your doctor may prescribe: --Vasodilator drugs to dilate the small arteries and improve circulation. --Sedatives to reduce the child's stress.
  • See Medications section for information regarding medicines your doctor may prescribe.

    ACTIVITY
    No restrictions, except for your child to keep warm and to avoid chilling while participating in active sports.

    DIET & FLUIDS

  • No special diet.
  • Because alcohol dilates blood vessels and may temporarily improve circulation slightly, your child may have an occasional alcoholic drink if your doctor suggests this.

    OK TO GO TO SCHOOL?

    When appetite returns and alertness, strength, and feeling of well-being will allow.

    CALL YOUR DOCTOR IF

  • Your child has symptoms of Raynaud's disease.
  • Discomfort worsens, despite treatment.
  • Ulcers that do not heal appear on the child's fingers or toes. ‡
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